Making it easier for caregivers
by making the experience better for kids
Hand-outs to Use at Home, in Clinics, & at Hospitals
Caregiver and Provider Education
Curation of Best Practices
Online Training
Caregiver and Provider Education
Curation of Best Practices
Online Training
An example:
Engaging kids in logging their own symptoms
CAREGIVER/PROVIDER EDUCATION
There is no system and no single resource or manual with the information that parents of kids with chronic illnesses need. Regardless of the type illness or condition - there are some universal experiences that kids and families encounter. I kept looking for the "What to Expect, When the Unexpected Happens..." or the Dr. Spock manual that would be a seminal resource for things like pill swallowing, pain management, alleviating anxiety during medical procedures, helping minimize discomfort during injections and blood draws, etc. There is some great research out there, some tested best practices - but its hit or miss if parents have access to that information. I have worked with pediatricians, child life specialists, and psychologists to find those practices and research and to translate into family and kid friendly practices. Below is a module on pill swallowing being used by one of my daughter's medical teams as well as other families from one of my support groups.
an example of our work - a guide for caregivers to assist children in learning to swallow pills and medicine
We offer resources for families, caregivers, and providers regardless of insurance status or ability to pay. Our goal is to vertically integrate best and holistic practices throughout the healthcare delivery system and communities of care to improve outcomes for all stakeholders.
JoIn us for one of the following "parent tested-pediatrician approved" workshops or training sessions Topic areas -
- Care Mapping - tools and techniques to create an overview for an integrated continuum of car
- Empathy Strategies - how to utilize empathy practices to improve caregiver/provider/patient relationships
- Shotblockers, EMLA, & the Magic Glove - techniques to take the "ouch" out of "sticky" situations and procedures
- Compassionate Communication - improving caregiver and provider skills
- Not Just a Spoonful of Sugar - techniques and skills to help pediatric patient compliancy with the administration of medications
- Mindfulness Techniques - teaching caregivers and providers how to regain a locus of control in the face of pediatric illness using established integrative medicine interventions with movement, music, art, and writing
- Overview of Integrative Pediatric Pain Management - beyond medication and meditation - explorations of herbal and mind-body medicine
- Re-thinking Developmental Milestones - considerations for how chronic childhood illness impact milestone mastery, locus of control, and individuation
OUR WORKSHOPS AND MATERIALS PROVIDE EVIDENCE-BASED AND INTEGRATIVE APPROACHES TO WELLNESS FOR FAMILIES, CAREGIVERS, AND PROVIDERS