Compassion-based Advocacy
We are all in this together. This giant system of care, these dozens of moving pieces, the multitude of providers, your family, my kid - we are all humans dealing with situations that are extraordinary and challenging. And no matter what - we can choose compassion as a lens and foundation.
That said - your child's health and wellness is at stake. And the system is poorly designed when it comes to taking holistic approach to care.
That said - your child's health and wellness is at stake. And the system is poorly designed when it comes to taking holistic approach to care.
Health Advocacy basics
- What is advocacy? Advocates, adversaries, and allies - who is what and why it matters.
- Learn why "bad patients" have better health outcomes -and what this means when the mom has to step in to be the "bad patient parent"
- Partnering with providers - understanding the "medical mindset"
- How to learn and model "clinical empathy"
skilll Building
- How to discern snake oil from solutions
- How to do a literature review about your kid's illness
- How to educate providers and effectively tell the story of child's medical history and needs
- How to create a care plan
- How to coordinate multiple specialists and treating providers
- How to research and evidence about your child's prognosis, treatment, and diagnostic procedures
- How to find and get into a clinical trial
- Where to find medical research on "main stream" and complimentary therapies