KIDS & CAREGIVERS


ADVOCACY - ALLIES NOT




​ADVERSARIES .... 

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Compassion-based Advocacy

We are all in this together.  This giant system of care, these dozens of moving pieces, the multitude of providers, your family, my kid - we are all humans dealing with situations that are extraordinary and challenging.  And no matter what - we can choose compassion as a lens and foundation.

That said - your child's health and wellness is at stake. And the system is poorly designed when it comes to taking holistic approach to care.

 Health Advocacy basics

  • What is advocacy? Advocates, adversaries, and allies - who is what and why it matters.
  • Learn why "bad patients" have better health outcomes -and what this means when the mom has to step in to be the "bad patient parent"
  • Partnering with providers - understanding the "medical mindset"
  • How to learn and model "clinical empathy"

skilll Building

  • How to discern snake oil from solutions
  • How to do a literature review about your kid's illness 
  • How to educate providers and effectively tell the story of child's medical history and needs
  • How to create a care plan
  • How to coordinate multiple specialists and treating providers
  • How to research and evidence about your child's prognosis, treatment, and diagnostic procedures
  • How to find and get into a clinical trial
  • Where to find medical research on "main stream" and complimentary therapies




nancynetherland@gmail.com
  • Home
  • KIDS
  • CAREGIVER CARE
    • COMPASSION & ADVOCACY
  • RESOURCES & STRATEGIES
  • RESOURCES
    • CLINICAL TRIALS & TOOLKITS
    • TOOLKITS & RESEARCH
    • CAREGIVER NAVIGATION
    • LINKS TO PROGRAMS
  • ABOUT
    • Mission & Vision