creating the mindset to navigate your new normal:
It can be hard to make meaning out of bad things and suffering, and yet, we do it all the time. There some pretty amazing writers and thinkers out there- who offer insights into how to:
And how to tap into the ecology of care by fostering and facilitating the "care" part of healing from all of the stakeholders who create the world and context of extraordinary children, their families, and circles of support.
- Move from the shock of "This Is Not My Beautiful Life How Did I Get Here...." to a concrete action plan
- Make meaning of something that doesn't make sense at all - like having a really sick kid
- Be grateful
- Connect with others
- Learn to choose "action" over "reaction"
- Leverage mindfulness and gratitude practices to increase resiliency
- Find hope when things seem pretty hopeless
- Laugh, live, love and dream
And how to tap into the ecology of care by fostering and facilitating the "care" part of healing from all of the stakeholders who create the world and context of extraordinary children, their families, and circles of support.
You can only "eat the elephant one bite at a time" - in other words - you don't have to figure this all out at one time. It can feel like that - especially in the medical setting.
It helped me to get into a strategic mindset - I literally created a list of what decisions were "urgent", "super important- but could wait a week", "needed to happen by XX-date", and those that "could wait awhile".
Accepting, living with, and managing the realities (or as I like to think of it sur-reality) of life with a child who has medical complexities and chronic illness takes time.
It helped me to get into a strategic mindset - I literally created a list of what decisions were "urgent", "super important- but could wait a week", "needed to happen by XX-date", and those that "could wait awhile".
Accepting, living with, and managing the realities (or as I like to think of it sur-reality) of life with a child who has medical complexities and chronic illness takes time.