FOUNDER BIO
I am a healthcare advocate and a mom-ologist with on-the-mom training in infectious disease, hepatology, rheumatology, gastrointestinology, and glitterology. I am also a healer and an artist. I am the mama to two kids 14 and 15 living with rare and incurable diseases. I also sit on the State of California's Children's Health Advisory Panel for Medicaid, the UCSF Benioff Children's Hospital Family Advisory Council & the Chronic Illness Clinic Advisory Council, serve as an ambassador for the Patient Centered Outcomes Research Institute, and am getting certified as a Health Coach through the Duke School of Integrative Medicine's Health Coaching and the Center for Mind Body Medicine's certification programs so I can extend the reach of this work. I want all families who live with a chronic and life-limiting pediatric illness to have access to wellness resources.
I am the co-facilitator of the California Chapter of Little Lobbyists, facilitate a caregiver advocacy circle with ChildrenNOW, sit on California's Medicaid Children's Health Advisory Panel (MCHAP), work with Family Voices of CA training and mentoring caregivers advocates, just accepted a seat on the national board of Family Voices USA, provide a family perspective for UCSF government relations at the State and Federal levels; and also founded Kids & Caregivers a caregiver to caregiver support program. I am engaged with a bunch of other activities that are educating, empowering and mobilizing families like mine who have children living with disabilities served by medicaid programs.
I work in healthcare as a writer and data strategist supporting non-profit and safety-net healthcare entities.In the past ten years, my team and I have helped secure over $100-million in grant funding, influenced international policy, and provided research for publications and speeches presented before the UN, WHO and the US Congress. In my free time - I swim outdoors, make gratitools, sprinkle glitter, and choose hope. My favorite book ever (at least today) is Man's Search for Meaning.
I am the co-facilitator of the California Chapter of Little Lobbyists, facilitate a caregiver advocacy circle with ChildrenNOW, sit on California's Medicaid Children's Health Advisory Panel (MCHAP), work with Family Voices of CA training and mentoring caregivers advocates, just accepted a seat on the national board of Family Voices USA, provide a family perspective for UCSF government relations at the State and Federal levels; and also founded Kids & Caregivers a caregiver to caregiver support program. I am engaged with a bunch of other activities that are educating, empowering and mobilizing families like mine who have children living with disabilities served by medicaid programs.
I work in healthcare as a writer and data strategist supporting non-profit and safety-net healthcare entities.In the past ten years, my team and I have helped secure over $100-million in grant funding, influenced international policy, and provided research for publications and speeches presented before the UN, WHO and the US Congress. In my free time - I swim outdoors, make gratitools, sprinkle glitter, and choose hope. My favorite book ever (at least today) is Man's Search for Meaning.
ADVISORY TEAM
- Nancy Netherland - Founder/Caregiver
- Borne, Deborah, MD - Public Health (Caregiver)
- Cohan, Deborah, MD - Foundation for Embodied Medicine/UCSF Emerita
- Duval, Jessie, MD - Pediatrician
- Elenbaas, Monica (Nicki) - Communications Expert/Formerly of the YMCA-USA
- Hajratwala, Minal - Writer and Writing Coach
- Lopez, Shelly - Caregiver Advocate
- Pequeno, Jessica - Caregiver Advocate
- Poles, Kassandra - Youth Advocate/Wellness Coach in Training
- Popovic, Ratka-Mira - Chinese Medicine-Practitioner
- Shuba, Lakshmi - Financial Consultant
- Slozberg, Oren - Commonweal-Executive Director
- Sorey-Reed, Carla - Media Advisor
- Talleyrand, Jean, MD - Motion Health/CESC
- Taylor, Sarah, PHD - Professor of Social Work/EBCSU (Caregiver)
- Walker, Odisa - Yoga Instructor (Caregiver)
THE STORY BEHIND caregivers and kids-
formerly known as CHOOSING GRATITUDE
collaborators
Communitas
Commonweal
Children Now
Family Voices - CA
Motion Health
UCSF Osher Center
Foundation for Embodied Medicine
Vallee Family Foundation
Jack Armstrong Memorial Fund
Commonweal
Children Now
Family Voices - CA
Motion Health
UCSF Osher Center
Foundation for Embodied Medicine
Vallee Family Foundation
Jack Armstrong Memorial Fund